Tuesday, June 1, 2010
6/1 Evening update - She spunky - but angry
Mom has been awake more this afternoon and evening. However, she is very frustrated and angry that she can't communicate with us verbally. We are trying very hard to understand what she is trying to say. We have used many mediums (maybe we need a medium - or mind reader). We tried having her write, which she can do, but with the tube down her throat she can't pick-up her head and her hands are restrained to keep her from pulling out the tubes (and she would if she could), so that means she is writing blindly. Her first written communication was 'pile of balls - velcro' followed by 'molecular model' - she was thrilled when we confirmed that she was telling us she feels like a 'molecular model'. If anyone out there can interpret the significance of that, please do. We apologized for our poor Charades and Pictionary skills, to which she replied, 'you need to play more'. We tried making an alphabet board that she can point to, but that frustrated her as well. We are open to suggestions on how to better communicate with her non-verbally, if you have suggestions. We were able to understand her when she told us she misses her mom and dad, and that she feels bad for Sandy Sterling, because she doesn't have a mom. Barb seems to be best able to understand her and she isn't letting Barb leave her side. Melanie and I are spending the night, too - for moral support for Barbie. She smiles and nods when we tell her of all the calls and messages from friends and family - keep those coming.
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2010
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June
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- Sunday, June 27, 2010
- Friday, June 25, 2010
- Sunday, June 20, 2010
- Wednesday, June 16, 2010
- Monday, June 14, 2010
- Sunday, June 13, 2010
- Another sleepless night
- You will not believe this-2
- Footloose and Fancy Free
- She's baaaaaaacccccccckkkkk!
- 6/6/10 - Good Sunday Morning!
- Out of Intensive Care! No more tubes!
- 2 am Saturday June 5th.
- Wishing I Was Bedside with My Momma
- Keep those cards and letters coming!!
- Friday 6/4 Noonish
- Friday AM 6\4
- 2am on Thursday June 3rd: Random Notes
- Night time 6/2 closing in on 6/3
- 6/2 - We are communicating! Yippie!
- 6/1 Evening update - She spunky - but angry
- Tuesday 5pm
- Tuesday Morning 6/1/2010
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June
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Thanks for the update. How about just a keyboard, since she knows it, perhaps if you watch what she is typing you could tell what she is wanting to say? Just a thought. It wouldn't have to be hooked up to anything. Glad to hear she is mad, that's a good sign! I'd say she is improving. Talked with Glenn this morning, he is in OH with Kate for her son's graduation. ALso have talked with Dale and Keith. So I'm keeping them updated. Tellher I love her! Aunt Ev
ReplyDeleteFigured out the "Molecular Model". Stay tuned for the answer!
ReplyDeleteBarbie